I am so sorry!! I totally know what you mean. . . what are you supposed to do now? I mean all things considered, there must be enough going on for you to still need some kind of treatment, right? So, then there is the question of who is going to take responsibility to give you the medication and for what exactly are they treating you for?

I mean right now they are treating me with prednisone and mestinon for a whole host of symptoms that look exactly like MG but I am sero-meg too but it's not like they can stop. I mean, I just started again with choking/ swallowing and walking problems over the weekend with a measly 5 mg reduction in pred. We are kinda stuck here. . .at least right now.

Do you have someone giving you meds in the meantime and taking care of you?

debra