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Old 06-15-2010, 06:23 PM
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Join Date: Jan 2008
Location: Illinois
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barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
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At first I was not going to respond because reading the scary stories about copaxone almost stopped me from trying it. But I am glad that I have tried beteaseron, copaxone, and tysabri even if I could not tolerate them. I just feel like you have to try. I most likely will try the new oral med once it is approved although my neuro is not so sure I should. he changes his mind from appointment to appointment.

That being said, in the 4 1/2 months that I was on copaxone I also experienced bad site reactions. But the reason I stopped it was that I also had 6 IPIRs in that time period. Following each IPIR, my temperature would spike and I would spend several hours shaking which was not a "normal" side effect. Like Joelle, I tried to go back on it a year later and on the very first day, my temperature shot up 103 a few hours after the injection.

However, a lot of people have been on it for years with very few problems.
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Jewels (06-20-2010)