Quote:
Originally Posted by Jimking
I am absolutely 100% convinced when it pertains to RSD those living with this disease unfortunately live in the stone age as far as treatment goes. I am totally flbergasted the way people are treated and the ignorance most doctors seem to have and I do mean most. This disease is not common and maybe on the rare side but not so rare that these doctors remain oblivious.
I've seen many times doctors seem to think RSD patients are lazy or drug seekers or have some alterior motive and because of this I asked my wife's doctor (wife has RSD) in all the time in her career has she ever ran across a drug addict who faked RSD to acquire drugs or anything else for that matter. Answer was "Never".
firegirl, I pray you'll get relief, be persistant. My wife refuses all evasive treatments and always has.
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Dear Jim, I do have to agree with the stoneage, I actually got a giggle out of that one. "the ignorance most doctors seem to have", this sentence stuck out like a sore thumb!! I believe most, if not all, doctors really do not want to treat "we the people with rsd." Ignorance is just their way of getting out without jeopardizing thier reputation. Let's face it, it is a very painful disorder, and the treatment plans are long term. My PCP actually every doctor in the office, attended seminars for this disorder four or five years ago. They are very knowledgeable about rsd, but they do not want to treat the patients. My PCP will and does treat me only due to the fractures, nerve damage, and every other test I have taken that affirms their suspicion. She does not want to treat the disorder due to the enormous amount of people who search the internet for disorders (drug seekers), for street value, or personal use, and this is one of those disorders that does not have any profound definition and this is why so many of us are scrambling around looking for doctors and left in severe pain. We are left (stoneage) due to the ignorance of many. It really is sad. I so agree with your wife on the non-invasive, I just had the better of my two feet, fused, tarsal tunnel entrapment and am just praying that this at least calms some of the post traumatic pain but has indeed flared the causalgia in both feet. I know the flare will pass, but wow, getting through it is rough. You know, you get to a point where you just want to be left alone and play out the hand that you are dealt to the best of your ability and to find a good knowledgeable, caring doctor is a must.
As always I wish you and your wife the best.
Firegirl, keep searching, there are doctors, not many, but they are out there we just have to keep doing the leg work and for most of us we are already lacking in that area. It took me years, but both of my doctors are aware and caring. I too bit a few frogs along the way.
Wishing you all a great night
Jeanie