Quote:
Originally Posted by Wilbyfree
Dear Jim, I do have to agree with the stoneage, I actually got a giggle out of that one. "the ignorance most doctors seem to have", this sentence stuck out like a sore thumb!! I believe most, if not all, doctors really do not want to treat "we the people with rsd." Ignorance is just their way of getting out without jeopardizing thier reputation. Let's face it, it is a very painful disorder, and the treatment plans are long term. My PCP actually every doctor in the office, attended seminars for this disorder four or five years ago. They are very knowledgeable about rsd, but they do not want to treat the patients. My PCP will and does treat me only due to the fractures, nerve damage, and every other test I have taken that affirms their suspicion. She does not want to treat the disorder due to the enormous amount of people who search the internet for disorders (drug seekers), for street value, or personal use, and this is one of those disorders that does not have any profound definition and this is why so many of us are scrambling around looking for doctors and left in severe pain. We are left (stoneage) due to the ignorance of many. It really is sad. I so agree with your wife on the non-invasive, I just had the better of my two feet, fused, tarsal tunnel entrapment and am just praying that this at least calms some of the post traumatic pain but has indeed flared the causalgia in both feet. I know the flare will pass, but wow, getting through it is rough. You know, you get to a point where you just want to be left alone and play out the hand that you are dealt to the best of your ability and to find a good knowledgeable, caring doctor is a must.
As always I wish you and your wife the best.
Firegirl, keep searching, there are doctors, not many, but they are out there we just have to keep doing the leg work and for most of us we are already lacking in that area. It took me years, but both of my doctors are aware and caring. I too bit a few frogs along the way.
Wishing you all a great night
Jeanie
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Dear Jeanie~
I am troubled by your statement..."you get to the point where you just want to left alone and play out the hand your have been dealt to the best of your ability".. My dearest friend..This where you and I do pick me up..This time I pick you up to say..yes..although these are our cards but admittably they are ugly..nasty.. painful cards..you are never alone in your fight..I will march, best I can right along side of you..hill and dale to see you thru..Dang cards.. I never was got at em anyways..
My story on this Dr. stuff is so disturbing also..At the time when my SCS implant was to be done..The Neurosurgeon insisted I wait for the smaller unit to be manufactured, as my stature is small and he felt I shouldn't support the unit available..so I was ok and patient with his feelings...8 months later, no unit yet!! I the mean time, this Dr. ordered an MRI to be done to map out space for the wires..Well..4 mos. after the MRI was done..my PM Dr. asked for the MRI results..at that time, we learned that my MRI showed a herniated disc in my back and the Neuro. never caught it..why?? Cuz he never read my results of the MRI scan...THEN the Neuro. asked me to come in the next day and literally ripped me apart for my results and RSD!!!!Included saying RSD does not spread... Needless to say..another Neuro. implanted my unit...and in record time..2 weeks later..ggrrrr!!!!!
Hugz everyone....
Kathy
