One more story that scares the living death out of me. Please tell me, it wasn't really this bad - but I'm afraid it was worse. First, steroids only make the body feel better, but as far as doing anything for RSD there's not a chance in you know where that it will help much. Then to hear a person masquerading around as a doctor say that he's not even sure RSD is real, well I'm just blown away. Guess my Mayo's team are all just amateurs who got their degrees in a Cracker Jack box. The last time I heard the kind statement you just told about not believing RSD exists but if it did, you've got it came from someone who's autistic, but not a doctor. How can a person not believe but at the same time say you do have something? With all my heart, I'm so sorry you went through this day of living hell. Bob.
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Originally Posted by firegirl
My primary doc called the neurology department to see if they had any ideas to help this flare I am in. Neuro doc said for me to take Prednisone & come in 2 weeks later to see him. I didnt take the Prednisone bc I've taken it several times with no results. So, my appointment was today. I wasnt expecting him to suggest anything I havent already tried or at least looked into. The doc's student came in first & said u definately have RSD & kept trying to give me a physical exam, which I am too sensitive for. Then, the neurologist came in. He said that "he's not sure that he believes RSD exists, but if it does, that is what I have". haha!! are you kidding me????? Then he starts saying, maybe you just have shingles (since April '07???). I had NO symptoms of shingles at all besides pain on one side of my body. He recommended I let him do another EMG....yeah right....way too painful. His other suggestion was that I should get a spinal tap done to see if there is inflammation at the rot of the nerves. If so, he would put me on a med for that. Finally, he gave me a PT referral (already had PT, OT, and aquatics). He made the referral bc I told him I didnt want the EMG & spinal tap. I brought up my concerns about the spinal tap leading to spread, but of course he said RSD doesnt spread!!! What a joke & a waste of time.....Not to mention, I am in horrible pain from the 2 physical exams.
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