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Old 06-16-2010, 05:46 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Teresa, That's great! Not that you have MG but that a doctor saw the significance of the result.

Be careful with that high dose of Mestinon. It's better to work up to a high dose. Most docs will play with frequency first. But if you need it, you need it.

Those SFEMG numbers are odd. Usually they are something like 55 MCD (mean consecutive difference), normal being 35 (as an example only). Not sure if they are talking about abnormal pairs or what.

I think it's funny when docs refer to MG as "mild." Like "He's a murderer but only sometimes." My ptosis can go anywhere from mild to 3/4 closed. It all depends upon what I've done or if I've been out in the heat. Anyone with MG can potentially have eyelids completely closed, chest wall muscles that don't work and the need to be on a ventilator. Oy.

What a relief. I'm glad you have an answer and a good doctor. That's fantastic.

Annie
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