Melanie, I truly understand what it's like to even question you sanity when you can "see and feel" MG, have proof and a diagnosis and then have someone doubt the disease. Sometimes they doubt the patient too, which infuriates me.

If someone had cancer, had chemotherapy and then no sign of the cancer, would a doctor say they never had it? If someone had hives from an allergic reaction, took Benadryl and Prednisone for the reaction and the hives disappeared, does that mean they were never allergic to what they reacted to?!!!

I never knew I had mononucleosis. Some doctor ran the antibody panel which shows if you've had it in the past and/or still have it. That antibody panel proves I had mono, even though I didn't know when I had it!!! I swear, medical logic is an oxymoron.

I forgot that you were on immunosuppressants. Well, that explains a lot, doesn't it? They give us drugs to make the disease disappear, then when it does, they think we don't have the disease anymore. You know how young kids go through that "peek-a-boo" phase of development, when they don't believe something is there until it pops out to reveal itself? I think some of these neurologists get stuck in that phase.

I really don't think some doctors know how to be empathetic or think outside their view of things, even if they are wrong. It's hard to be open-minded when you've been taught for so many years that you should only look at facts, you need to be only objective and you are always right. That is what they beat into them in medical school, you know.

Yeah, you better stop eating altogether . . . or see a psychiatrist to help you understand the Freudian reason why you hate food and are afraid to swallow it.

I think that if you remain calm, are logical and express all this nonsense in an objective manner to your "real" neuro, it will all be okay. Hang in there.


Annie