My AD pain started after Gamma Knife Surgery for trigeminal neuralgia.
First of all I would like to comment on my tn. It was the worst 12 to 15 horrible attacks that would last for 5 minutes to 35 minutes.....non stop pain.....every single day.
Now to AD...I would take the tn attacks back any day compared to what I have now. This pain is 24 hours a day, 7 days a week. It never stops. At least I had some pain free minutes in between attacks with tn.
THE PAIN:
BURNING. BURNING. BURNING. BURNING. BURNING. SOMEONE IS PUTTING A TORCH INSIDE OF MY MOUTH, AND OUTSIDE OF MY FACE.

HEAVY
PULLING
ELECTRIC JABS
SWOLLEN FEELING
PAINFUL NUMBNESS
HURTS TO TALK
HURTS TO EAT
HURTS TO BRUSH TEETH
VISE ON UPPER AND LOWER TEETH
RELENTLESS
SEVERE EYE PAIN
LACK OF CONCENTRATION
MEMORY LOSS
ITCHING

Pain starts on top of head,moving to forehead,nose,eye,cheeks,lips,chin,jaw,ear.

Inside of mouth: pallet,tongue,cheeks,upper and lower teeth,gums,lips

PROCEDURES: MVD JANUARY 2010: successful, got rid of TN PAIN

MAY 2010: Trial PENS.....stimulator for facial pain. Read threads on this site for stimulators
Successful.... Pain reduced at least 60%. Still on pain meds.

PRESENT...WAITING APPROVAL FROM INSURANCE COMPANY FOR PERMANENT PLACEMENT OF THE STIMULATOR

If you would like some information about the stimulator for facial pain, please email me at calewark@me.com. Also you can contact Tina ( burntmarshmello)
on this site.

Cheryl Lewark