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Old 06-19-2010, 12:18 AM
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NeuroNixed Craig NeuroNixed Craig is offline
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Join Date: Sep 2006
Location: Richmond, VA USA
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NeuroNixed Craig NeuroNixed Craig is offline
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Join Date: Sep 2006
Location: Richmond, VA USA
Posts: 501
15 yr Member
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Debbie,

Fighting spasms is a tough battle. I've used a cooling vest and taken Baclofen for years but it never made much difference. Well, with this new diagnosis and not being MS, now I know why. The heat intolerance is still there big time and grossly limits my leaving the house. I keep the temp at 71' in the summer and 65' in the winter.

I'm sorry you're having to deal with this, but it's not like it's going to go away. Possibly your docs may be able to diminish the affects which will require a decision on your part. Deal with the current challenges or take on a whole new medical persona due to med's and their side effects? Sometimes that is a tough choice.

My positive thoughts are with you.
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Craig ~ NeuroNixed
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"Thanks for this!" says:
Debbie D (06-19-2010), DejaVu (06-19-2010)