Member
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Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
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Member
Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
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Hi! I am so sorry that you have been inducted into this circle of RSD, but please be assured that you have brought your fears to the right group of people. I have found many angels here who have helped me so much, and have taught me how to better live with this disease. RSD is a scary thing and it is really ok to be frightened. Your body is undergoing many changes that you have never expected to have to deal with. I am also waiting for approval for a spinal chord stimulator (WC), and there is a good place in this forum to get education about this. The main thing is to learn all you can about this disease, find a good and caring doctor, and not to be afraid to take control of your health. The cold feeling and skin color changes are part of this. I am having a difficult time even tolerating any air conditioning this year, and always carry a shaw or sweater with me. I have RSD in my left arm, shoulder, creeping up my neck and head and in my right foot and leg. Hypersensitivity is also a big part of this. I always joke about having to have "big arm" clothing so that nothing touches my arm. I do not know about bone marrow changes, that would probably be a good question to direct to MrsD. I would probably make an appointment with an OB/GYN about the breast mass and also the late period. These may just be connected to a hormonal thing and that could be what is causing your headache. Glad you found this site and hope to hear more from you, Lisa
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