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Old 06-21-2010, 11:34 PM
nilram nilram is offline
Junior Member
 
Join Date: Dec 2007
Location: Oregon
Posts: 72
15 yr Member
nilram nilram is offline
Junior Member
 
Join Date: Dec 2007
Location: Oregon
Posts: 72
15 yr Member
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You might consider looking at anything that can help restore peripheral nerve function. I'm mostly on the 'peripheral neuropathy' neurotalk forum--because, not co-incidentally, I have peripheral neuropathy. Mine is "ideopathic," meaning, my doctors have no idea what's causing it. So, besides taking the prescribed drugs to try to reduce the pain (but which do nothing for the numbness), I'm often doing research to figure out what might restore function to the nerves.

I was taking vitamins and doing yoga and getting good results--at least keeping it at bay. After a period of unemployment and discouragement, and not taking vitamins or doing yoga, I'm in a worse state physically. Because they don't really know what's causing my disease, it's hard to say if that's the cause, but... I'm now back doing my research on vitamins. (And taking them, and doing yoga.)

At the start, my neurologist recommended some vitamins (which surprised me, since I've never had a doctor take vitamins seriously before). A general multi-vitamin, 2000mg Vitamin C, 400mg Magnesium, a B-vitamin supplement, and Alpha-lipoic acid.

Additionally, I've learned that other vitamins can help your nerves heal. Benfotiamine (a water and fat soluble form of thiamine, a B-vitamin), try 300mg. Acetyl-l-carnitine and Co-enzyme Q (better when used together than separately). Methylcobalamin (a specific form of B-12, taken underneath the tongue, 1-3g/d). Omega-3 fatty acids -- used tremendously by every nerve cell. Vitamin D.

Those are the ones I'm working with right now. Additionally, I've read that Lion's Mane mushroom can cause your body to produce nerve growth hormone, as can Retinoic acid. And that Citicoline (also known as CDP-Choline) is also very useful to nerve cells. As is N-acetyl-cysteine.

That's what I know to look at so far. As you do your own research, consider that your nerve damage may be due to "entrapment"--this is significant since some therapies are more specific to entrapment than to disease. (Come to think of it, taking acetyl-l-carnitine and co-enzymeQ might be less important for you since those are more important for mitochondria, the cell's energy producer, a part of the cell that's more stressed in nerve disease.) I've gotten some of my ideas off of a forum populated by some "life extension" people. Perhaps a Naturopath or a doctor focused on a "life extension" practice could help you develop a supplement therapy that could help with nerve regeneration.

My neurologist is a professor at the local medical university, but is pretty open to alternative therapies. I've tried acupuncture--didn't help me, but maybe there's an acupuncturist with some ideas for you. A friend with some Ayurveda training came up with my yoga routine, and with sesame oil massage, and that seems to help--maybe there's an Ayurvedic doctor around who might have some ideas. Chinese herbal medicine is pretty advanced I guess, haven't gone there yet. Unless you have the priapism problem solved, make sure they focus on a nerve problem (as opposed to a 'sex' problem).

Nerve regeneration can take a while, be patient. Good luck.
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