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Member
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Join Date: Apr 2008
Posts: 900
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Member
Join Date: Apr 2008
Posts: 900
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Hi Pink,
I'm sorry if the discussion of PML seems irrelevant to you on the Tysabri thread. I know it can be scary. I've been in the forum since April 2008, started taking Tysabri in July 2008 and this is really the only place I come for up to date info on the drug. I pretty much trust what I get here because I know the people in this Tysabri forum do their research. Unfortunately, I don't think you can talk about Tysabri without talking about PML. I like to keep abreast of the risk factors so I can keep reassessing my choices. I find the recent reports of people going to get tested for the JC virus antibody to be exciting and promising. I wish everyone the best. I still come and report on my infusion #s as it seems others do too and find there are useful questions/check-ins about side effects and what to do with them. The PML rates are higher in Europe than in the US and that gives me some hope it is less riskier for Americans. The antibody assay gives me hope too. Good luck Pink--hope you are feeling better soon.
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On Tysabri and love it. .
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