Thanks sometimes I feel the experience of others is more helpful then my doctors. I am sorry you had a stroke have you googled central pain syndrom from a stroke? You may even come across someone who has had this and could give you feedback. That is part of the frustration in treatment is we are all so different and nothing is cut and dry. For me I have to experience some errors made a long the way and I know others have as well.
Glen I too was told that the longer one has pain there are the changes you state in the brain.