Hi Nordic Girl .... welcome!

It does seem that some of your symptoms are consistent with MG - but some are not. There are a number of folks who take prednisone for MG and it does help them. So I would imagine that if you do have MG, the symptoms would have been helped by the hydrocortisone you were taking for your back.

Are you having increased weakness since you have decresed the hydrocortisone?

Has any one of your doctors tried Mestinon to see if you responded?

Is there another neuro that could perhaps bring a new perspective?

I am so sorry you are having such difficulty getting answers, but unfortunately, it is not unusual. Be persistent, get copies of all your tests, do your own research, and keep searching until you find a neuro that will work with you to your satisfaction.

Good Luck!
Sue