Quote:
Originally Posted by RNcrps2
I have had such a struggle with acceptance. I have also stuggled with being on narcotics forever. I have done water therapy, biofeedback and other relaxation techniques to come off narcotics. It worked briefly, but life was no better. I was clearer which forced me to view how life will be. A lot of crying. Choices- i was put back on narcotics and to think about SCS implant. The trial(which i had over a year ago) helped but was very positional. Fear of spreading with surgery- spread? I now have generalized RSD. We don't think the tendon/nerve surgery worked-so if nerve is still compressed my RSD will continue to spread. Ketamine-i was recommended ketamine coma. I won't do that for a treatment.
Last week I woke up with RSD in my low back.
momof4
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Dear Momo4;
I am so sorry to hear of your struggle, challenges and pain. Acceptance....this is just one of those illnesses that can not be accepted. I too have done all of the above and to no avail. I too have gone off all of my medications from time to time to only bear the unbearable and then I think why, I had multiple surgeries, I have had tendon surgery, nerve and both feet are now fused. I have been dealing with this for almost ten years, acceptance is difficult. What do we accept? There is no logic to this, it is so tempermental, how can we truly mentally reason with this. The highs and lows, I mean at 11 am I am doing good and by noon I can't walk. (I mean seriously, who does that!) So "what to do"? We do the best that we can do at the moment and thats just the way it is. Always, always support yourself no matter where you are at the moment. Reach out as you have to the many caring people on this forum who do understand. Meditation, exercise (when applicable), pray, hope, and laughter. Acceptance, I don't think will fall upon me, but living in the moment, good or bad has helped me tremendously. Treat the person, not the disease. Inside all of this misery is a wonderful person "you" with a painful debilitating disease. Pain is bad we are not! God Bless you, this thread has truly touched the heart.
Jeanie