A Mestinon trial is how my doctor arrived at an MG diagnosis - I only had one "iffy" result on ALL of my tests, but I was able to take Mestinon at a rather high level with no problems. If your body doesn't need it, you will definitely know it!

If you think this might be what you need, INSIST on being allowed to try it. I would be willing to bet that there are more people who test negative on the antibody test who still have MG and would benefit from Mestinon.

Have you had a Tensilon test? That was what "sealed the deal" for my doctor. My eyelid droops, but not as much as my doctor is used to seeing. She was skeptical that I had MG, but when I was able to take as much Mestinon as I did, she said that was enough for her. I'm still fairly new to this, so we are still experimenting with the right dosages for me, but I can definitely tell the difference when I am on it (and when I have gotten too much)!

Also, get a second opinion from another neurologist - one who is willing to listen to you. That can mean all the difference in the future - if you aren't comfortable with your doctor or don't think that he/she is going to help you, you aren't going to go and see them until things get really bad, and that's not a good thing if you are dealing with MG -