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Old 06-25-2010, 03:48 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
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15 yr Member
cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
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The volume dial is a good way to describe 'it' whatever it is.

If they are going with Fibro as a working diagnosis, they NEED to come up with what it IS, and not what it isn't, as a disease. It is the same with Sjogren's....what IS it? I have lumped myself into UCTD, with SNF and sicca (like half the people with Sjogrens).

I have the +ANA, but no serum markers for Sjs...in my book=neurological sicca. I think my sicca is PN....therefore, with a +ANA, but -ENA=UCTD, with SNF....and sicca.

And, yes, it does feel like the radio is on and up full blast....nothing doesn't hurt....and you know what....it didn't hurt any less when I was in kick-butt shape doing triathlons...it hurt the same. So it is not deconditioning. I buy degenerative arthritis too, and mine is so bad, I have given up buttons...zippers are next.....I am ready for VELCRO!

I would think that sensory nerves all over one's body, regardless of location would cause that feeling....maybe it's me, but, I think SNF can cause that all over pain....so can inflammation. In the absence of SNF or, in the absence of a +ANA, then, maybe fibro. I just hope they check people for SNF before they tell them they have fibro.....just in case something like IVIG is indicated.

Well, I need to batten down my hatches....we may get a trip to see the wizard tonight....more storms on tap.....I can tell.....I HURT all over. On the other hand, my dog has not yet wrapped himself around the downstairs toilet.....yet....
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DejaVu (07-10-2010)