Teresa,

I have not had a Tensilon test. Did you have yours done in the hospital? Did you have any side effects from the Tensilon?

I have seen so many neuros. I'm rather happy with the one I have now even though she is 3 hours away from me. Still, I want one who will continue to look for answers for me. I'm afraid that when she sees what Mayo said....not much, she will give up on me. I went through most of the local neuros early on. No one would take me seriously.

If you don't mind me asking, what was your iffy test? Was it the Tensilon? My binding antibodies came back at 20, which I think is almost borderline, but I'm not sure.

Is there any way we can post pics somewhere? I could show you my eyelid drooping. lol

I will be seeing my eye doctor the second week of July I will definitely bring all this up to her. She may be one who can advocate for me.

Thanks again. And, sorry if I've asked too many questions.