I have been in the hospital for the past 6 days!! So So Scary!! Serious breathing problems, rapid shortness of breath and my MEP or MIP was down to 12. They said they expect that kind of nuber with someone who just came off of a ventilator. Under 20 is awful. They were very concerned. They had me on respiratory testing and neuro checks every 4 hours throughout the night to hopefully keep me from being intubated. I choked 15-20 times in one meal before I went in. I had a special swallow eval and thankfully everything was going down the correct tube still. I was unable to walk unassisted again as I was headed to the ER.

Thankfully the same neurologist that I had in the hospital last time was on and had the courage to treat me. Of course the treatment could have killed me he said since there can be kidney issues and stroke issues but we were totally between a rock and a hard place with extreme bulbar symptoms he was saying but sometimes you have to make those kind of decisions. 5 days of IVIG and 60 mg of prednisone/day. 75 mg mestinon and I am SO MUCH BETTER!!!!! No choking, waking normally, no shortness of breath, good stamina (better than the last 2 months).

Of course I am still unconfirmed MG but he said he cannot imagine what else it is but I am still needing to go to more specialists to get the firm diagnosis if for no other reason than he said that it cost $10,000 for this 5 day treatment and without full proof the ins. co may deny after a while so. . .

I really hope this holds me for a while. I feel like a new person : )

I see an MG specialist on Thursday!!

debra