Erin;

I hurt my back about a year ago. I had steroid shots that did not help at all. And we have no control over muscle development (something my pain dr. did not understand). Physical therapy to improve my core muscles was impossable.
I talked to my Neuro because I have severe pain in my neck and shoulders either from the MG or the side effects of meds and put him in touch with my pain dr. I am now on a med for pain that my Neuro approved and I can not tell you how much it has improved my quality of life.
Maybe your Neuro will not prescribe something for your pain but if you can find a pain dr. that understands your desease he may work with your neuro to prescribe something to relieve your pain.
Good luck.