Erin, I'm so sorry you are still in such pain. Keep your spirits up. There has to be something someone can do for you!

I wish I had time today for some research. There has to be some kind of new therapy for brittle bones out there. Or a pain doc who can take a holistic approach. Could you have some kind of collagen disease or predisposition? What if another condition is underlying your difficulty with Pred? I know you've had loads of tests but if they don't do the right test or look in the right direction, they could miss something.

My Dad had MRSA. Not fun. He lost a toe to it. Are you on acidophilus? If not, I sure hope you will go on it indefinitely. Pred can make it hard to absorb nutrients, as I'm sure you know. Are you on flax or fish oil? It might be worth it, if you haven't already, to see a nutritionist.

I hope you will get better at some point soon. It's good that your MG is "stable" but you aren't! Take care.

Annie