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erinhermes · 06-26-2010, 03:18 PM

Hi sweetheart!

THank you so much for your kind words...they mean so much to me!

I just need to realize how good I really have it, but it is hard to do sometimes....

What are you up to?

They are going to reduce my pred, but some of the damage has been done already - I have drug induced addisons, brittle bone syndrome and can no longer walk, but at least I have my scooter and a dr that really cares.

I AM on Forteo for my weak bones and have had ramps and pull up bars installed in my house but it is hard not being able to walk anymore.

I think once I lose the weight I will feel a lot better!

I have missed all of you so much but did not want to be a downer. I've been reading most of the posts and am so happy to see new members!

When you get some time, please let me know how you are!

Love,

ERin

Quote:

Originally Posted by suev

Erin,

I am really sorry you are going through all this - - especially the pain.

If your MG is under control. does that mean that you can begin to change your meds so that you might have fewer side effects? I mean I know you can't just stop...but are they suggesting that there is any benefit in beginning to taper off?

As you are able, pls keep us udated. There are so many people here who care about you and miss you. Wishing you some pain free time!!

Sue