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Old 06-27-2010, 09:45 AM
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cyclelops cyclelops is offline
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Join Date: May 2007
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
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There are so many things that could cause a widespread neuropathy or neuronopathy the list would be exhuastive. The chemicals we are exposed to in our food, fabrics and medically are just the beginning.

The system could save a great deal of money on Fibro cases by simply doing a skin biopsy. I do think that the skin biopsies could be done in more proximal sites to see if this trends more towards the Fibro like symptoms instead of the typical hands and feet involvement we see with SNF.

I can't believe that more doctors and researchers are not linking Fibro to SNF...especially given the dysautonomia of Fibro.

The issue with Sjogren's is the lack of good criteria. People are diagnosed with NO inflammatory blood markers. I don't have the +SSA and SSB and feel that I dont really meet the criteria for Sjogrens. I am not looking for a label, any label, but if people want a label, Sjogren's is easily proclaimed. Lip biopsy becoming disregarded lately which is good. Sicca is not Sjogren's. Because the criteria are so loose, it is hard to say if Neuropathy is common in SjS or if the 'SjS' the person has is really neuropathy! Without serum markers, likely the seroneg. SjS is Neuropathy.

Sicca is present in many conditions including SNF.

I think in the presence of a +ANA, and -ENA, the diagnosis of UCTD needs to be used. In the absence of both, SNF needs to be explored and SjS should not be bestowed so quickly.

SjS and Fibro are both catch all diagnosis. SjS should not be if they used serum diagnosis.

Attaching Fibro as an additional diagnosis to SNF, SJS or any other diagnosis is a moot point until they figure out what Fibro is, and I have a feeling it is already encompassed in other conditions.
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DejaVu (07-10-2010)