I suppose the whole diagnosis issue will all depend on how the doctor writes it up in the notes too, right? I mean he did say he cannot imagine what else it could be and he had to justify treatment to the ins co. . .

Doc said I should be good for at least 2 weeks from the IVIG. In the papers he gave me it said it could last up to 6 wks but I guess I have it pretty bad so he must not be holding onto that much hope that I'll be riding this out a long while but we'll see. He and my neuro just really want to see what the MG specialist comes up with. The MG specialist is the doctor that was involved with the awesome stem cell transplant of the MG patient in 2007. Very exciting

My breathing was at -12, yes, but I also got a -18 so maybe that and the VC #'s saved me from intubation? My respirations were 30 +/minute. But the strange thing was that this time I could still take a deep breath which was different than the last time so at first I was just trying to slow down my respirations (which didn't really end up working) and I couldn't figure out if I was in trouble.

The staff at the hospital was sooo much better this time with me and they gave me oxygen and they weren't just asking if I needed something for anxiety like last time (which was ridiculous). They treated me like I actually had an illness and that I wasn't possibly sick or possibly a head case and no one was quite sure.

I would love to get my hands on that booklet you mentioned Alice. That may come in handy down the line. . .or is there a link somewhere?

Thanks everyone for the hugs and support. I am so happy to have you all

debra