I am sorry, I do understand somewhat how you feel. I have connective tissue disease (arthritis), Fibromyalgia/CFS, SFN and am being worked up for dysautonomia. From what I have read my condition sounds like POTS or autonomic neuropathy. It makes me feel just terrible. I hope you feel better... I know it is not easy.
I just joined a gym that has an arthritis approved pool. I am going to try to exercise and see if it helps me feel better... even though I cannot get off the couch sometimes, I am still going to try. I am getting so skinny and de-conditioned.
Mere
Quote:
Originally Posted by Sallysblooms
I move, walk, etc. But the rubbing and massaging has really been great. Deep in the muscle, different that just walking, etc.
I have CFS and P.O.T.S. so I cannot walk that far without getting dizzy. I sit a lot. My new chair is wonderful. No pressure on areas like before. My old chair was really nice, but not for sitting so much. You really do wear them out. I agree, my new chair was so expensive, but worth it.
My cfs doctors are excellent, they are definately doing a great job. I am blessed with them and a wonderful family and hubby. I am working with my doctors very hard to get well. Rest is very important for CFS as well as my supplements.
I just wanted to let everyone know just in case they did the same thing I did.
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