|
New Member
|
|
Join Date: Jun 2010
Posts: 2
|
|
|
New Member
Join Date: Jun 2010
Posts: 2
|
helpful hints from another mom in pain
Quote:
Originally Posted by MominPainRSD
Hi all!! This forum has been such a wealth of information and support for me already along my relatively brief road with RSD. I respect your wisdom and experience in so many ways and thought it would be interesting to hear from everyone as to what you each find to be invaluable in your day to day life as you deal with your RSD.
I know many of you have mentioned Epsom salts, heating pads, down pillows in car rides, etc.....but are there specific brands or types of things or fabric contents that you find most soothing or beneficial to you??? I would like to start acquiring an RSD "survival pack" of items (preferably finding things on sale a little bit along) that might help and come in useful when the need arises (or better yet......BEFORE the need arises!).
I thought it could be useful to read each others experiences and what works for them, and perhaps we could ALL pick up a few tips we hadn't thought of before.
Thank you all in advance for responding!!  |
 Hi from another (single) mom in pain.
First off I think its best to be as honest as age-appropriately possible with your child(ren). It's so important for them to realize this problem has nothing to do with them. Thank goodness they are there to remind us of what's important and to put a smile on our face!
Now... to what helps me! I guess I'm different from most everyone else w/ RSD, but the only thing that really helps me (besides meds) are ice packs.
I put them on my lower back (most likely the source of my RSD),and what ever area is flaring up at the time. I usually have 3 on me at all times (shoulders, legs, even feet!). Heat only helps when I'm having mega-back spasms! Unfortunately, it's harder too keep ice packs frozen in the real world than it is to keep heating pads/ hotpads hot.
I have found bed rest, massage,whirlpools & stretching to be helpful.
Also, as strange as it may seem, sometime I ask my son to tickle my feet or arms when they hurt badly. The change in external stimuli really helps (one dr. thinks this is why ice helps me!).I think you're quite smart in getting as much info early on & finding out what works for you.
|