Hi Barb,
Welcome back to the forum. It has been a long time, and your account of it is honest and straightforward, just as I remember you from way back. I am amazed by your story of how quickly a medication was able to bring you back, and as you say your diagnosis is secondary to Parkinsons and "not rare" I wonder whether it happens to people and we do not hear of it because they drop off the radar and they do not come back, perhaps there are also those who have had a similar experience to you, but maybe not the good fortune to have been treated with something that worked well for them.

I have heard anecdotally of PwP who became what is known over here as 'a handful', and also of sinemet psychosis (from a neuro who insisted I did not have PD and that l-dopa was dangerous). And have a friend who is severely bi-polar, he has a chemical imbalance of dopamine, he makes far too much of the stuff. Just the nicest person, at the mercy of his very unbalanced neurotransmitters. And it is hard not to notice that there are mood changes that come with the drugs that we take, and sometimes they fluctuate just as much as our movement does......

But I am sure you will have wondered about all the possibilities, and for now it is good to hear that you are better, recovering, and re-inhabiting the person you are, claiming back your life. And it is very good to have you back here.........

Best Wishes
Lindy

Dystonia is often caused by wearing off or wearing on, especially the feet and toes, but also can be part of PD. As yours comes on in the evening perhaps it is more related to meds ? A lot of us do get this.......