Quote:
Originally Posted by RUReady
The cardio doc and my pain mgmt doc know each other and practice at the same facility , however the cardio knows nothing of RSD . I will certainly have more consults before I have any type of procedure . Talking to the two docs is like talking to one I quess , as they both suggest to see what the other one thinks ..... The procedure itself is only done at a few of the major hospitals in our region , so I will talk with specialist for this procedure at least before we do any surgery . The biggest stumbling block with all involved (myself , family , docs. ,etc.) seems to be the RSD and how it plays into this picture . Definately worried about spread as mine has gone from LUE to entire left side - head to toes already . Then if you exclude the RSD you still have the different theories on when to operate , risk vs reward is an extreme for both waiting and proceding . Sorry to ramble ! Take care and thanks for response...
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RU READY... Oh boy typing that never made me think more than I do now...Ru ready?? Oh gosh..as I read your posts first know that what ever time and rotue you decide on I will keep you in my prayers...I too have a leaky mitral value plus a history of A-Fib... I can brag..I had the paddles one time... if I were in your shoes, not sure what or when I would do intervention mostly due to our RSD in the mix...it is such a crap shoot and RSD can take ownership of our heart also even with out surgery..My best thought is please...get as many Dr.'s involved as possible on your case and day of surgery..I am thinking much knowledge not only with your heart but also RSD Dr.'s to shed the what if spin on things..Can't get too much knowledge..I believe if it is a must, life altering problem then it is a wing and a prayer whether RSD will present itself there...I am sorry you are in such a glitch...
I will pray for you no matter what!!
Love, Kathy
