I don't have this experience but am sending thoughts and am so sorry you are going through so much. I know this is hard to handle on every level. I know the no cure is hard but hopefully with proper management you can get a full life back. I hope your CT gives answers so you can get relief. I do wonder if you need to see someone else cause one the pain doc office blowing you off and then ordering an mri when you can't have one. It does not sound like they are on the right page. I am not sure if it is possible though for you to see someone else but just a thought. Hope you feel better.