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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi MG Mom, I saw this, and wanted to quickly reply, as I can imagine how difficult it must be for a Mom to watch her child go through all these symptoms.
Many MG'ers seem to have this symptom. I'm not exactly certain what the cause is, but I don't think it's the Mestinon.
It's been a while since a group of us discussed this issue, and for the life of me I can't remember what some said about it as far as the medical side to it happening. But many of us had this problem.
Some times, I wonder about the lack of Oxygen, from weakened lung muscles. I do remember it was something I was asked at the MDA clinic, and they too said it seems to be a symptom in many Mg'ers. I don't think they had a clear answer.
Probably depends on how a person's MG is affecting a person's body. As we are all so different, and different in how MG affects us. It's the reason Myasthenia Gravis is known as the SnowFlake disease.
Best of wishes, hope all is well soon.
Will keep you in my prayers
Love Lizzie
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