I have had MG for a year and a half now. I have been on every med and have done every treatment inclouding thymectomy....so maybe I can help....I am not sure what you mean about your legs feeling full of lead? What I can tell you is that I have weakness in my legs do to MG and it feels like they are heavy and hard to lift per step...at my worse my legs turn to what I refer to as "noodles" and I walk with a wobble as if I have no control of my legs although I do. If I continue with activity I feel a burning sensation I compare it to the pain you feel when doing a squat and cant take it any longer before you stand...only the pain doesnt go away for me unless I rest for a significant amount of time. For the most part, I do not feel these things unless I have pushed my limits...so I have to know what my limits are. Prior to treatment I felt these things all the time regardless of medicine...so you may not be on the right dose or med for you....remember, everyone is different and the doctors have to make a treatmentment plan that is best for you. Be patient, my "plan" took a while to find, but I am doing good now and count my blessings...please ask me more if I can help =)
Love
Zayna
Quote:
Originally Posted by Kathie Glenn
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