Hi Sandy
You sound like the person that has similar internal pain to me. mine all started with gallbladder surgery and then a "tummy tuck" to cut off all the swelling. BUT what caught my eye was that my periods stopped after my tummy tuck, and my gyno said im not in meno pause and she gave me meds but it wouldnt start again. i dont miss it...but just wondering how it all ties in. I have 70lbs of swelling on the right side of my abdomen, the pain is incredible. all the docs i have seen are clueless. i just found RSD yesterday and trying to learn all i can. I am mostly bedridden because of the swelling and pain.
any advice is appreciated.
Lori
Quote:
Originally Posted by SandyRI
Hi Kathy,
Last summer I had a terrible time with IBS. It was when my RSD was really flaring and I had just switched to Fentanyl to control my pain. The spreading had gone from my URE, cervical spine and head into my right leg during the previous 12 months. I started Lidocaine infusions in July and by Sept or Oct my IBS pretty much resolved. But the heat of the summer may have had something to do with it also. In addition to that, I also had those RSD intermittent shock waves into my chest, usually in the evening when I was trying to sleep. Those stayed around through the at least 3 or 4 Lidocaine infusions, which helped to settle things down a bit. Unfortunately, the infusions never helped my head and shoulder get all the way better.
I also thought that I had started menopause, because my periods stopped. And I had sharp pains in my lower back. But as soon as started ketamine, all that changed. I immediately started menstruating again, and my back is fine. So I'm guessing that I had pelvic involvement with my RSD and didn't know it.
I've also been on blood pressure meds for a long time - my pulse and BP were out of sight last year. I take .10 of clonidine 2X a day and it helps.
XOXOX Sandy
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