Hi, MG Mom. Do you have an informal name?

I'm sorry your son has MG. That's pretty young but kids are often better at adjusting to disease than adults are.

Do they know the cause of the feeling of wanting to pull and stretch muscles? Has it been clarified better? Could it be parasthesias? Has anyone checked his B12 level, like Desert Flower and TBarney mentioned? My B12 deficiency made me want to rip my feet off. I'm always wary of doctors who throw a drug at a problem without figuring out what is causing symptoms first. I'm not saying that's what your son's doctor did but they often do that.

Neurontin/Gabapentin can be a useful drug but it can unmask MG in someone, cause MG or make MG worse in someone who has it.

http://www.ncbi.nlm.nih.gov/pubmed/10918256

http://www.painjournalonline.com/art...004-6/abstract

Is it possible your son has celiac disease? If it were me, I would call your son's doctor and discuss the possibility that the drug he is on could be making him worse. Did he have an EMG? Parasthesias are a small fiber neuropathy, which has a lot of causes. Here's a very good article for you.

http://www.ccjm.org/content/76/5/297.full

Mestinon itself doesn't usually cause memory issues. MG may cause them over time but it's unlikely this soon. It may be the Gabapentin.

http://www.minddisorders.com/Flu-Inv/Gabapentin.html

Do not stop a drug without talking to your son's doctor first. Drugs like Gabapentin may need to be withdrawn slowly. A symptom like memory loss should be called in to their office right away.

I hope your son gets some relief from something. Does he take vitamin D and calcium? You'd be surprised how many people have muscle aches from a vitamin D deficiency.

Best wishes to you and your son.

Annie