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Old 07-03-2010, 09:21 AM
sylbaker sylbaker is offline
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Join Date: Apr 2010
Posts: 1
10 yr Member
sylbaker sylbaker is offline
New Member
 
Join Date: Apr 2010
Posts: 1
10 yr Member
Default Mmn

Quote:
Originally Posted by fireman0224 View Post
You might want to talk to your doctor about Rituxan (Chemotherapy) it has done wonders for me in a matter of 10 months, I noticed HUGE improvements of strength and stamina with this treatment. While im taking Rituxan i still take IVIG treatments.

Best of Luck
I was diagnosed two years ago finally with MMN WITH CONDUCTION BLOCK by a neurologist in Chicago at Northwestern. Supposedly I no longer have the conduction block which is unusual. I have been taking weekly IVIG treatments for the above length of time....I tried giong every other week for 6weeks but noticed the return of weakness. I will be seeing my oncologist in a couple of weeks. My labs show a M spike along with other IgG and IgA, etc abnormalities and I'm beginning to think I am dealing with two different problems being treated by the IVIG. She has ordered MRI scans of chest, abdomen and pelvis. I think she is looking for lesions that may suggest meyeloma. I was seen by a specialist at John Hopkins a year ago and he diagnosed me with IgM paraprotein which features include predominantly large fiber neuropathy again consistent with longstanding IgM gammopathies. My insurance company has covered these very expensive treatments of IvIG this entire time other than my deductible but I'm very concerned they are going to refuse to pay them as IvIG is not a cure for MMN.
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