Quote:
Originally Posted by GalenaFaolan
I take every opportunity to educate others on RSD. Some days I feel like it'll never be well known. I get down a bit because I think I'm only one person in a small part of the world. What good am I doing?? Most of the time though I actually feel better for telling others about it and think, even though I'm only one there are many others and I AM making a difference no matter how small. I've told one or two people and they have gone to someone in their family or a friend and find out that their friend or family has heard of it and knows about it and tell them even more and then it goes to a friend who's never heard about it, etc. It really doesn't end. One little ripple on the water from a stone keeps going outward from there. Each of us are a stone making a ripple.
Hugs,
Karen
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Hip Hip Horray for you Karen! Your right - It is VERY important to educate others. I've made it my goal in life to explain to anyone and everyone I can about my husbands condition. KNOWLEDGE IS POWER! As a matter of a fact I recently explained to a few of my co-workers about what he has. They were suprised, amazed, dumfounded and sympathetic. They also learned something - Which is a GOOD thing. I know now in my heart that if the day comes where they ever run across someone with the same condition they will remember my words and what I tought them.
I recently saw too - to my amazement a bumper sticker that read something to the effect of "RSD Survivor" and had reflex sympathetic dystrophy around the edges - I LOVED IT!!!! I feel for the woman who was driving the vehicle BUT I thought....What an awesome way to spread the word!!! To let people know that there IS something out there called RSD!
I know its frustrating sometimes to talk to others about you or your loved ones condition - That people find it hard to understand BUT with your words and even the help of an website link or two the more people we can tell about this horrible condition the better it will be understood by others.