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Old 07-04-2010, 09:42 AM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
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Laura-

I swear that it sounds like we are dealing with identical problems. I am beginning to think that it is less a matter of hypo- vs hyper- than it is a matter of dysregulation or poor control. It is possible that you are moving back and forth between the two states as well

The temptation to head for the ER was a factor for me, too. Watch your blood pressure and body temp but don't get obsessed with it. The endocrine system runs on feedback loops and you can throw yourself into a panic attack.

I'm going to add a little more reading material or you. Remember that we are juggling three balls- PD, thyroid control, and a thyroid driven periodc paralysis. Number three is causing the weakness but number two is the foundation for three and is easier to deal with. Get yourself a bottle of acetyl-l-carnitine and keep it on the shelf for confidence if nothing else. It is common enough that the big pharma chains have it. If you do decide to try it, don't under dose. There is a threshold effect. ALC is considered safe at least up to 4 g/day although if pregnant then common sense advises extra caution.

http://www.lef.org/magazine/mag2007/...thyroid_01.htm
<LEF sells supplements, it is true, but they also turn out high quality research.>

http://www.webmd.com/vitamins-supple...ITINE&source=2

http://www.doctoryourself.com/ames.html
<This one is a little OT but worthwhile. Dr. Ames has led the research into the other aspects of carnitine.>

My only reservations at present are the questions of hypo- vs hyper-. If we think in terms of a shortage of one being a surplus of another, then you have to wonder will it make hypo- symptoms worse. But if you think of it as a shortage in both cases (as seems to be the case) then that should be moot. If there is any real danger I think it would be in a runaway hyper- situation (the "storm") which ALC seems to prevent. Too far in the hypo- direction and one feels like crap but no emergency.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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