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Old 07-04-2010, 07:18 PM
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Dear Cindi:

I've had 20 infusions - my protocol was every day for 10 days, then 2 days a week for a month, then I skipped a week and did 2 days the following week. I titrated up to 150 mg a day.

I've never had a problem "coming out of it." There are meds that are given to me in addition to the ketamine in my infusions, the same as Hannah - clonodine, versed, and others that mitigate any hallucinations or other such impacts on your pyche.

Like Hannah, I've noticed that my energy levels are not what they used to be. It's been a month since my last 2 infusions, and I'm not nearly as tired and listless as I was just after the infusions, but I'm still not back to "my old self," which is desperately where I wanted to be. My pain is better than it was - not perfect - but much better. I just have a tremendous amount of stiffness in my shoulder and neck, which leads to some residual neck and head pain in the evening. Most importantly, I haven't gotten any hideous migraines like before (yet!!).

I would highly recommend at least attempting ketamine if you can access it. I was able to get United Healthcare to approve it (after several denials - I had to appeal), but later RI WC Court ruled in my favor and my infusions are now covered by them. It has made a big difference for me and so many others. In my opinion, with an experienced doctor, there is nothing to be afraid of.

Good luck, XOXOX Sandy
Quote:
Originally Posted by cindi1965 View Post
I am terrified of Ketamine....I have watch to many of my MR/DD residents come out of it and have problems afterwards....does it help with the burning? I may have to talk about this with my doctor...is it expensive without insurance?
Thanks,
Cindi

Last edited by SandyRI; 07-05-2010 at 08:44 AM.
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"Thanks for this!" says:
hannah1234 (07-05-2010), Kakimbo (07-05-2010)