Hi and welcome

Sounds like you're on the right path, with the neuro appointment.

Did you have any injuries/illinesses/procedures/dental work anywhere on your body prior to the onset of this phenomenon. You could be experiencing referred pain because of something that happened to your body that wouldn't be related to the area. It's kind of unique how we're wired up. Maybe myofascial release/crainal trigger point release therapy might help if the neuro don't pinpoint a cause and fix it. I had TMJ symptoms from my scalenes (in the side/front of your neck that caused tightness/popping/cracking in my jaws. I also had botox in my scalenes that gave me total relief from the TMJ symptoms for about 2 - 3 weeks. I think I had botox 3 times and each time my TMJ was relieved. So, hang in there till you get the neuro opinion. Happy to report, I'm not experiencing the TMJ problems anymore.

I hope you find some answers and get relief soon.