Quote:
Originally Posted by SandyRI
Dear Lori,
Welcome. I hope you never feel alone again. It is so scary, not knowing what is happening, but knowing that SOMETHING is NOT RIGHT.
FMichael posted the names of some docs at John Hopkins for you on another post. The VERY BEST thing you can do for yourself if get to THE BEST pain management doctor possible that can help you and your family diagnose and manage your symptoms. It will make all the difference in the world for you. Many of us have gone to numerous doctors before finding the right one....
Good luck and know that we care, XOXOX Sandy
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Sandy has great advice..!! Sandy..you ar so eliquent and compassionate...
Your Dr., who manages your RSD will make all of the difference in the world..allow them to know you and your status and keep up with new treatments and ideas on your behalf..I believe having a "neutral" person to talk with is also important..A couselor..as we need to have an hour once in a while to let loose and feel all bars down..We can not handle everything that is happening/going to happening to us..both physically and mentally... our families have a bunch on their plate watching and trying understand what is happening..it is so hard for them also esp. since we don't have all of the answers...I have really tryed and will continue to try to understand the impact my illness has on my family and friends...my heart goes out to them even tho it may seem like I have a bitter reaction they are being swallowed up by our aliment as well as, us just they don't know how to react to it not handle it either..It is different for everyone invloved..
Welcome lori...Please lean on us for strength and love.
Kathy
