thank you all very kindly.
i am trying to convince my drs that this is what is wrong with me. one dr wants me to get a bone scan that might show it, but he doesnt thik it will since i have abdominl pain. im at the end of month pain pills, and not enough left to control the pain. i hate asking them to increase my meds at the pain clinic because they look at me like im a druggie. couldnt be further from the truth. i havent had a diagnosis yet for the rsd, so they have mostly have focused on my herniated disc.
i have memory loss short term and long term, do you all have this too?
i take prednisone to keep the swelling from growing. everytime they try to switch my meds i swelled more and it doesnt go away. i also take imuran to suppress my immune system. plus so much more.
wht helps you on the days when the pain meds dont take away your pain and your brain doesnt stop thinking!!! thats how i feel today. like i have no control over my life since pain is the center.
thank you for listening!
lori
Quote:
Originally Posted by keep smilin
Sandy has great advice..!! Sandy..you ar so eliquent and compassionate...
Your Dr., who manages your RSD will make all of the difference in the world..allow them to know you and your status and keep up with new treatments and ideas on your behalf..I believe having a "neutral" person to talk with is also important..A couselor..as we need to have an hour once in a while to let loose and feel all bars down..We can not handle everything that is happening/going to happening to us..both physically and mentally... our families have a bunch on their plate watching and trying understand what is happening..it is so hard for them also esp. since we don't have all of the answers...I have really tryed and will continue to try to understand the impact my illness has on my family and friends...my heart goes out to them even tho it may seem like I have a bitter reaction they are being swallowed up by our aliment as well as, us just they don't know how to react to it not handle it either..It is different for everyone invloved..
Welcome lori...Please lean on us for strength and love.
Kathy  |