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Originally Posted by lorigood243
thank you all very kindly.
i am trying to convince my drs that this is what is wrong with me. one dr wants me to get a bone scan that might show it, but he doesnt thik it will since i have abdominl pain. im at the end of month pain pills, and not enough left to control the pain. i hate asking them to increase my meds at the pain clinic because they look at me like im a druggie. couldnt be further from the truth. i havent had a diagnosis yet for the rsd, so they have mostly have focused on my herniated disc.
i have memory loss short term and long term, do you all have this too?
i take prednisone to keep the swelling from growing. everytime they try to switch my meds i swelled more and it doesnt go away. i also take imuran to suppress my immune system. plus so much more.
wht helps you on the days when the pain meds dont take away your pain and your brain doesnt stop thinking!!! thats how i feel today. like i have no control over my life since pain is the center.
thank you for listening!
lori
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Lori....
Believe me..We all have these hour/days you are experiencing...Try to hold positive hope in your mind and heart..Educate yourself and be your own best advocate..When I have bad hours/days..sad and hopeless...I try to reach out and do something or say something nice for/to someone else..That in turn takes my mind off my pain and helps my heart and gives me some thing else to feel good about..least for that period of time anyway..I am not able to withstand pain meds, bad tummy.. so I have the pain constantly with no medicine help and it has been 3 years...so I had to find an alternative way to feel better, without losing my mind..look for something to help you cope..reading, talking.. meditate ..sing..cry or even listen to the birds.. talk to us...but what ever it is it will be worth a million to help you cope...my best wishes, Kathy