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Old 07-05-2010, 02:56 PM
scared2285 scared2285 is offline
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Join Date: Jul 2010
Location: Billings Montana
Posts: 1
10 yr Member
scared2285 scared2285 is offline
New Member
 
Join Date: Jul 2010
Location: Billings Montana
Posts: 1
10 yr Member
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Hi tos 8. I have had epilepsy since I was 3 and I am now 48. So i have kind of grown up having seizures and it has been the norm for me. I have both partial & clonic seizures. I can't imagine the pain of adjusting to this later in life. My sz are pretty well controlled. For now I am on tegretol and lamictal but I do still have both kinds maybe once a month. I know the pain and embarassment of having a seizure can be horrible. In high school I once wet my pants while changing classes. Thru all this what helps me get thru those times, is the fact now days people are more knowledgable about epilepsy. People will usually be supportive and make me feel comfortable if they feel comfortable around me. Once I told my new boss about me epilepsy, she just told me plain and clear, "just don't have them at work". Needless to say we had a very long talk about my condition and years later she became like a mom to me. There will always be times when you will have them in front of strangers. Be sure you are always wearing a medical alert symbol so they understand what is going on. Friends,Neighbors,co workers,and anyone you are going to be around that will be alone with you for long periods of time you need to let them know what may happen. When you are open about your condition and let them ask anything they want to know and answer their questions, I have found it not to be so embarassing for me and as well they aren't scrambling to figure out what to do with me. When you are on a first date for example and have a grand mal you may feel like that person may as well seen you naked because you didn't want that part of you exposed. I am sorry to say the embarassment will sometimes rear its head even to those of us that szs has been apart of all our lives. Just remember you are a very special person that has a few unique qwirks and don't let anyone make you feel like you should be embarassed. I will keep you in my prayers
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