Hello

This is my first post so please bare with me. I am a 56 year old male and have been told by 6 Dr's that I have CRPS TypeII.

On March 5th. 2007 I had surgery to my right hand. They did joint replacement on the base of my thumb and at the same time took care of the tendinitis in the lower part of my right forearm.

4 days after surgery I was doing PT 4 times a week for 6 weeks which just tore me up. I told the PT's that the top of my hand was burning and extremely sensitive to touch. She told me that that was normal due to all the nerves in the hand and would go away in several weeks that the Dr. gave my hand and wrist a good work over.

The first follow up visit with the Dr. I asked him about the burning pain on the top of my hand and around the wrist, and lower forearm but was told the same answer. I asked why the pain was not where the insertion took place at the base of my thumb but never did get a answer to this question from the doctor after asking many times over many visits for a year and a half. My very last doctor visit did not go very well after insisting on a answer to the burning pain on the top of my. I was told " that I must have slept on my hand wrong and that this was my fault". I could not believe what he just said to me as his answer after all this time waiting for logical informed answer and quietly left to never set foot back in his office again.

Any how I found a doctor that did many tests for several months and was left with only one final last attempt exploratory surgery. He made it very clear that he would do the surgery thinking that I had a nicked radial nerve and would try to repair it with a tube. Anything after the surgery other then follow ups I would need to fine another doctor. I agreed. Surgery took place on 1-2-2009 The doctor opened up my wrist / lower forearm were I told him that the pain was always a 10+ and to his surprise he found my radial nerve completely severed.

I had several follow up visits with this doctor which was great compared to my first doctor. My new doctor told me that I was need to wait at least 18 months to see if the nerve grew back the 11 inch. I now waited only to fine that I cannot be around any A/C coolers, cold water, cold air, ect. After waiting 10 long very painful months I went looking for the very best hand specialist in my area.

I found this lady doctor that is by far the best doctor around. See is the most caring upfront will take all the time I need for my answers to be fully answered by her were I understand what she is talking about. With her I am a person not a number you get her full undivided attention and if it takes 45 minutes for that office visit she makes sure all questions are taken care of not giving the its 5 minutes times up see you next time. She is a god sin.

After going through many more test to see why I am in more pain then before she set up surgery on 12-17-2009 She removed the joint from the very first surgery in 2007, had to do carpal tunnel, and found that the radial nerve did not take so she trimmed the nerve end and placed a 4 in. tube. After all this my hand and arm felt great while recovering. Its been close to 7 months now the only problem is the nerve will not regrow back into the hand and fingers. The pain is 10+ through out my whole right arm and upper back. My new doctor has done everything possible through no fault of hers and is first rate with me. She has sent me to another great PM doctor. He is doing what he can to help me cope right now.

I am sorry I have gone on and on and will end this post. I do have several questions that I need answers like SCS. Again sorry for the long winded post.


Thanks to all

Dennis