Quote:
Originally Posted by SandyS
Hi Mike,
Thank you so much for your post, also it is nice to put a face to your posts!  My Lindsay has been to the Cleveland Clinic and saw Stanton-Hicks. He didn't feel she was a candidate. I do however know of a young girl that has had the "Snail Poison" She was in stage 3, they put it in at the Cleveland Clinic. It did help her, she was in a wheel chair and in stage three of her plight. She spent 3 months in the Childrens pain rehab program. She is now walking and functioning after three years. However, Lindsay was not a candidate.
Lindsay has also undergone two rounds of the three day four hour Ketamine infusions with Dr. Kirkpatrick. She is not up to doing the Ketamine again. But, I am going to try the Hyperbaric chamber. You always have such great information. How are you? I hope that your days are better.
 Sandy |
Dear Sandy -
One can never say you haven't done your homework. But I'm sorry to hear that Lindsay wasn't a candidate for Ziconotide.
Good information or not, I feel bereft of good ideas at this moment) far too late at night in California) and wish I had more to offer. And I'm not about to suggest RUL ECT for a twelve year old! And forgive me for not checking the search engine on this, but while not a cure, have you exploered the possibility of IVIG along with the HBOT?
Glad you liked the pic. I color enhanced it to make up for the lack resolution: that's Half Dome at Yosemite in the background from a couple of summers' ago.
Wishing you and Lindsay well with all my heart,
Mike