Thread: Skin biopsy
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Old 07-06-2010, 08:12 AM
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nide44 nide44 is offline
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nide44 nide44 is offline
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Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
Posts: 1,660
15 yr Member
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Quote:
Originally Posted by kpRN View Post
My diagnosis is pretty much the same as yours, Bob, except I have not heard "length dependent" but I have heard "demyelinating." What type of treatments have been tried for you? ......
I don't know the proper terms, but the length dependant has something to do with the distance from the CNS. Feet & hands are at the greatest length or distance.
Demyleinating is when the myelin sheath is deteriorating. Many small fibers don't have a sheath, just an axon- so.... 'axonal' rather than "demyelinating".

Treatment?
Just meds and supplements is all they (at Hopkins) seem to be able to do for my problems. I sometimes think that I've been more instrumental in my aggressiveness to my treatment, than they have.
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