Thread: Prove it?
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Old 07-06-2010, 06:59 PM
Mark in Idaho Mark in Idaho is offline
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Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,421
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,421
15 yr Member
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not crazy,

Avoid using medical terms when you talk to doctors. They do not like patients self diagnosis. The current term for this is cyber-condriacs. They think you found your diagnosis on the internet. This alienates them quickly.

Do not try to tell the doctor anything but your symptoms, If you can ask questions like: What can cause me to feel ..... ?
Or, When I do ....such and such.... I react to it by .... What does this mean?

The best question is "Help me understand this?" It empowers the doctors.

You may have already hit the critical mass of doctors entering "somatoform" or such in your medical records.

Tell the doctors what you have done to try to minimize your symptoms such as ... I don't do .... anymore because it makes me feel ......

If you can bring a witness with you who can say when he / she observes like ... personality changes, over-reacting, appearing confused, lack of following verbal instructions, etc.

A rehab specialist may be helpful. They are sometimes labels a Rehab and Physical Medicine specialists.

Search this forum for posts from Lucy (Lynlee). She lives in NZ and may have posted some of her experiences that you can benefit from. She knows her stuff. She is a long time sufferer of PCS and has struggled to get help with the NZ system.

She has a post at mid-page of this link; http://neurotalk.psychcentral.com/sh...all#post488888

Try clicking on her screen name under "view all post by this poster."

Keep yourself relaxed. If you are overvigilant in addition to serious PCS symptoms, the doctors will focus on the over-vigilant as the primary issue.

My best to you.
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Mark in Idaho

"Be still and know that I am God" Psalm 46:10
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