Going back to that previous post again Those silk PJ's sound good
Your no misfit Laura. Your smart sassy and articulate. That's a winner anywhere.
Re quote below about "odd neuro". Your telling me.
What a surreal world they live in. The MRI showed something that could be causing some PD like thingees but he thinks not. Is he psychic ?
Anyway that what got me here to this forum to explore the murky world of diagnosis esp after reading about the 2600 odd misdiagnosis annually in the UK.
G girl Im afraid I disagree with you re toxicity of L Dopa. But lets be friends why we bicker and await the jury
The MRI is standard protocol As Im Sure You Know (AISYK) to rule out the other nasties.
I suspect Neuros the world over back themselves on diagnosis and clump in little friendly groups where they all know each other. Whats a few wrong diagnosis amoung friends
So Im here to chat, meet people online, more chat, ignore button a person or two ( U know who U R) and generally expand my meagre knowledge in a seeking playful para sympathetic nervous system dopamine enhancing way
Jak
Quote:
Originally Posted by Conductor71
Aw, thanks for opening the door a little wider to facilitate discussion. Now that I understand that one of the things we're looking at with meds and levodopa is 50 years of stasis, I can say I am in full alignment with you there on our woeful current standards. Why push to produce better, more sophisticated treatments when we keep our business or research mojo going with the status quo. Monies will continue to pour into pipeline "developments" that never go anywhere, while patients get older, always focused on that ever elusive "cure". We all know that a cure is only in the patient's best interest. It's rather an easy, little status quo cycle to keep going. 
Do you find it odd that your neuro would give you a possible PD diagnosis after just examining your MRI and a left hand tremor? I am just comparing to diagnostic standards here which are sorely lacking. I was pegged for six years with Essential Tremor as I didn't have much else going on. I thought that Neurologists usually required the presence of at least two cardinal signs of the disease, if not three these days. Aren't you wanting more evidence that this is indeed PD? In its early stages, PD looks like many other, more benign conditions, so I am really astounded that your neuro would leap to PD with only one symptom.
You must have pretty sophisicated MRI there. I am fascinated because I have never been convinced that my tremor is Parkinsonian as I have a family history of benign familial tremor. My MRI was simply studied to rule out atrophy and MS (no mylenation present). This is the first I have heard of a tremor being identified via MRi presence of infarcation. I do know that researchers do not even know for sure what pathophysiology is involved in PD tremor, so that is great they can tell you with some confidence that they can make some direct correlation.
Finally, what makes you think PD is autoimmune? Is this based on what you see in your work environment?
Just to clear things up.. I did not or do not judge anyone for whatever course of treatment or non-treatment they choose. I only sought some clarity as things seemed to be rather confrontational all the way round. I, for one, would love to have some regular contributors who are med free, i think it will make for some great points of comparison down the road.
Thanks for clarifying, Jak. |