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Originally Posted by RUReady
I was the lucky winner of permanent horners syndrome after an unsucesful RFA in the ganglia branch of nerves in the neck . I have the droopiness on the left side of my face and the left pupil stays constricted . I have occasional flares that involve the eye and have been told by my opthomologist that the ganglia branch of nerves is tied in with the eye and my nerve is telling the brain we have a problem even though the eye itself is healthy . During these flares I will have severe pain in the eye and blurred vision , all I can do is wait it out when it comes on . Hope this helps some . Take care !
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I too was the lucky winner of permanent horners syndrome. I had TOS with the removal of a rib. I woke up from the surgery and could only open 1 eye,and that was in 1990. To this day when I flare my eye droops,gets swollen and red and painful,the Dr.s tell me to also wait it out, easy for them to say, but evidently there is nothing they can do as I have seen a few specialist, it stinks but we must just keep on going.So,yes I would have to say that RSD can go to your eyes. I hope everyone has a painless day today
Wendy