Does anyone have or know of hypothyroid neuropathy?
I have been on Synthroid for 38 years due to thyroiditis. Over the years, I am sure my doc used only TSH to adjust my synthroid dosage. I have since found out that TSH is not a reliable metric for someone with no thyroid. I believe free T3 and T4 levels are the only way to maintain optimal thyroid health and they should be at mid to high normal.
In Feb. my doc cut my Synthroid back by 20% because my TSH was 0.1. I became very hypothyroid symptomatic including aching feet and leg muscles. It continued to where my feet and legs burn, tingle and ache as in neuropathy. I also have RLS which developed 5 years ago. I have since found out that all these symptoms and RLS can be caused by hypothyroidism. I believe my T3 level has been low for years and maybe is the reason for my neuropathy. I have since raised my synthroid by 10% and added Cytomel, T3, but the symptoms persist. Don't get to see an endochronologist for 6 more weeks!
Does anyone have a similar experience?
John