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Old 07-09-2010, 10:38 PM
rachel's daugther rachel's daugther is offline
Junior Member
 
Join Date: Jun 2010
Location: Chicago
Posts: 54
10 yr Member
rachel's daugther rachel's daugther is offline
Junior Member
 
Join Date: Jun 2010
Location: Chicago
Posts: 54
10 yr Member
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Thank you so much for your post. My daughter just turned 17 and she has CRPS for 5 months. She did a re-hab program at RIC in Chicago for 10 weeks (2 times a week for 1/2 days) while in the program CRPS spread from knee to lower leg, ankle and foot. She had 2 nerve blocks, 1st lasted 11 days and 2nd lasted 9 days, both times pain came back full force. RIC will only do 3 N.B in a six month period, so not sure if we should do the last one. She is doing PT 3 times a week and is able to walk for short distances during the day. She just does not seem to be getting any better actually pain is getting worse. Not sure what to do from here. Thinking of 3 week Re-hab program at the Children's Hospital in Boston, Ma or doing hyperbaric oxygen therapy. Would really like to hear more about what you did with your son. Please private message me with email address, I would really like to hear more about it. It truly gives me hope!
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"Thanks for this!" says:
DejaVu (07-10-2010), Kakimbo (07-14-2010)